A New Tool to Help Patients Make Better Decisions After Cancer Surgery

When someone has major surgery for cancer, like in the abdomen or pelvis, they face a tough decision afterward: Should they take medicine to prevent blood clots, even after they go home? This medicine, called extended thromboprophylaxis, can be important, but it also has risks. To make the best decision, patients need to understand both the benefits and the risks.

Why Is This Decision So Important?

After major surgery, especially for cancer, there’s a higher risk of blood clots. These clots can be very dangerous if they travel to the lungs or other parts of the body. Taking medicine to prevent these clots can be lifesaving. But, like all medicines, there can be side effects, such as bleeding, which patients need to be aware of.

A New Way to Help Patients Decide

To help patients make informed decisions, researchers developed a tool called a risk-stratified patient decision aid. This tool is designed to guide patients through the decision-making process, giving them clear information based on the latest scientific research and their own health risks.

The idea is simple: When patients understand their risks and the potential benefits and harms of taking the medicine, they can make better choices that fit their personal preferences and health situation.

How Does the Tool Work?

The decision aid takes into account a patient’s individual risk of blood clots, which is measured by something called the Caprini score. This score helps doctors determine how likely it is that a patient might develop a clot after surgery. Based on their score, patients receive specific information that’s relevant to them. The tool also helps patients weigh their options, so they feel confident and prepared to make a decision.

What Did the Study Find?

The researchers tested this decision aid with 17 patients who were having major surgery for cancer. They found that using the tool made a big difference:

  • Less Confusion: Patients felt less uncertain about what to do. Their decisional conflict scores dropped significantly after using the aid.

  • More Confidence: After using the tool, patients felt more confident in the decisions they were making. They felt well-prepared to choose the option that was best for them.

  • Better Knowledge: The patients’ understanding of the risks and benefits improved, with knowledge scores increasing from 50% to 75%.

Why Does This Matter?

Making decisions about health can be really hard, especially when the stakes are high. This decision aid gives patients the information they need in a way that’s easy to understand, helping them feel more in control of their health choices.

What’s Next?

While the results are promising, the researchers believe more work is needed. They want to see how well this tool works in different settings and with more patients. The goal is to make sure that every patient who needs this kind of decision-making help can get it.

Final Thoughts

This new decision aid is a great example of how research can directly help people. By providing clear, personalized information, it empowers patients to make choices that are right for them, leading to better outcomes and less stress during a challenging time.

This tool represents a step forward in patient care, making sure that decisions after cancer surgery are based on the best available evidence and truly reflect what’s important to each patient.

View the full paper here.

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CCMB scientists as part of the TFRI Marathon of Hope Cancer Centres Network